WORKSHOP: Information Governance and Data Linkage

School of Population Health, The University of Western Australia, in collaboration with Health Information Research Unit, School of Medicine, Swansea University, Wales is proud to present this "Information Governance and Data Linkage" workshop.

This is an intensive two-day workshop on the principles of information governance in the health and human services sectors and their practical application to data linkage systems.

The rapid development of data linkage facilities has brought with it the urgent need to develop new policy frameworks, operating protocols and technical security measures that facilitate the efficient use of linked data by researchers and also provide robust and accountable systems to comply with regulatory requirements and to achieve even higher levels of data security and protection as a commitment to best industry standards.

David Ford and Kerina Jones from Swansea University in Wales have been working at the forefront of international best practice in information governance and data linkage for a number of years. Their carefully crafted frameworks, protocols and security measures have been put into practice at the SAIL (Secure Anonymised Information Linkage) Databank, which is the recently commissioned national platform for health‑related data linkage in Wales.

Workshop outline: David Ford and Kerina Jones will cover the following topics during the two-day workshop: · General principles of information governance in the health and human services sectors. · Elements of comprehensive application of information governance to a data linkage system. · Legal, policy and procedural tools for information governance and security in data linkage systems. · Computing and other technological tools for information governance and security in data linkage systems. · Personal identity protection solutions in the presence of low copy number fields. · Risks and benefits of information governance and security from research and privacy perspectives. · The Welsh SAIL Databank as a case study.

Learning objectives: The workshop acquaints administrative decision-makers, data custodians and researchers in the health and human services sectors with the theory and practice of modern information governance methods that are relevant to the design and operation of data linkage systems. It is also suitable for those involved in the development of information systems containing personal information regardless of whether data linkage is an existing feature. Upon completion the participant will:

· possess an overview of the principles of information governance that are relevant to privacy protection and data security in the health and human services sectors

· understand how principles of information governance are applied to data linkage systems, sufficient to be able to develop policy frameworks, operating protocols and technical security measures that are on a par with best international practice

· be aware of the range of different approaches and solutions to information governance and security in data linkage systems

· understand the trade offs that are inherent within decisions about information governance and security and how to optimise synergy between research and privacy outcomes.

Please visit our website for information on enrolment and fees.

PLEASE NOTE: This workshop is SOLD OUT - Please email [email protected] to be placed on the waiting list.